Involvement of consumers in health technology assessment activities by INAHTA agencies (2013)

Involvement of consumers in health technology assessment activities by INAHTA agencies.

David Haileya1, Sophie Werköa2, Rugayah Bakria3, Alun Camerona4, Britta Göhlena5, Susan Mylesa6, Jasmine Pwua7 and Jomkwan Yothasamuta8 For the INAHTA Working Group on Impact of HTA

a1 University of Wollongong, Australia
a2 Swedish Council on Health Technology Assessment
a3 Ministry of Health Malaysia
a4 Australian Safety and Efficacy Register of New Interventional Procedures -Surgical
a5 German Institute for Medical Documentation and Information
a6 Healthcare Improvement Scotland
a7 Center for Drug Evaluation
a8 Health Intervention and Technology Assessment Program

Abstract
Objectives: To obtain further information from members of the International Network of Agencies for Health Technology Assessment (INAHTA) on the involvement of consumers in their programs.
Methods: A questionnaire for a survey was developed and sent to member agencies in November 2010. Survey responses were compared with those from an earlier survey conducted in 2005.
Results: Of the thirty-three agencies that provided responses, 67 percent involve consumers in some aspects of their health technology assessment (HTA) programs, compared with 57 percent in 2005. As in the earlier survey, most agencies reporting involvement have contact with consumer or patient organizations and a large minority also involve individual consumers. Summaries of HTA reports that are intended to be easily understood by consumers are prepared by 84 percent of the agencies, and 42 percent involve consumers in dissemination of HTA material. In both areas, there was some increase from the levels previously reported.
Conclusions: The survey results suggest that there is a trend to increased involvement of consumers by the INAHTA agencies in their programs but that the level of involvement remains relatively limited. The manner of consumer participation varies between agencies.

Full Text: http://journals.cambridge.org/action/displayAbstract?fromPage=online&aid=8839369